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In which Toast discovers he has IgA nephropathy and has a think about his future

August 5, 2013 3 comments

ToastTerminator3-09

The results are in. I have IgA Nephropathy. If you’re curious you can read more about it at this handy website.

If you don’t have time to read all that this is what happened:

At some point (science doesn’t know when) and for some reason (again science doesn’t have a clue) a load of my antibodies decided to take up residence in my kidneys and messed them up a bit so they don’t work very well.

What a bunch of twats.

The weirdest part of that, for me at least, is that science doesn’t know what caused it. I thought we lived in the civilised world? I mean I can look at cat videos when-ever or where-ever I want. I’m basically a cyborg, albeit one with wonky kidneys.

What’s next

The doctor’s don’t know what the long-term plans are for this condition. It follows one of two paths. In the first one, the kidneys are a bit smashed up but they don’t get any worse and you live a relatively normal life but just avoid salt if you can.

The second path is that the kidneys get a bit worse every year until they stop functioning and you have to hook up to a machine or buy some new ones on eBay. If you aren’t sure this, is ‘the sad’ outcome.

I won’t find out which one I’m on for a few months because they need to sample my wee far enough apart to draw a nice graph. Although I’ll have another doctor’s visit this week just for the lols and to possibly adjust my prescription.

Drugs

That’s another weird thing I have learned: When it comes to doctors giving you drugs they are just sort trying stuff to see if it works. Like making soup without a recipe. They give you some stuff, see what happens and then if that seems okay, give you some more stuff. In this story I am the soup and the drugs are herbs or things you’ve found in the fridge that you should probably use up.

I’m going to be on drugs from now on, but at least the latest mix doesn’t give me weirdly swollen ankles. Weird ankles, that TP thinks I am imagining but makes the kidney doctor immediately change the dosage I am on. I’m glad that did that, fat ankles don’t work with skinny jeans.

Feelings

I’m still a bit vague about what’s happened over the last month or so. Vague as in I’ve not really processed it and turned it into a pithy anecdote with jokes in. Sometimes I feel fine and other times I just feel like gazing in the the middle distance, maybe at a wall, and not thinking too much.

I’m a bit angry occasionally about how it seems unfair. I mean I’ve done some silly stuff like drinking a lot in my twenties but I eat well and I excise a lot. It feels like some dude sat in his flat playing World of Warcraft and eating crisps has got completely functioning kidneys where I am stuck with wonky ones. It’s bollocks.

Some other times I feel incredibly guilty. The Theater Producer didn’t sign up for this. More insidiously I often feel guilty when I do nothing, like reading a book. Like I’ve suddenly been made aware of my mortality and now I should treasure every second by writing books or changing the world. When all I really want to do is watch Orange Is The New Black and eat chocolate.

Gym heroes

On the plus side the people in the work gym having a great week, because they’ve saved a life, sort of. They’ve even asked me to be a case study on how their job is mega important. My atomically high blood pressure was very dangerous. I wouldn’t have known without them. They were so chuffed they even gave me a free padlock for my locker. WINNING AT LIFE.

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